Our Impact, One Moment at a Time
Pursuit for Patterson started as a small, grassroots effort — and grew into a community of people showing up in big ways for kids and families affected by Epidermolysis Bullosa (EB). From icy plunges to long-standing traditions, every event has helped raise awareness, fund research, and remind families they are not alone.
Plunge for Patterson
An annual cold plunge with a warm heart
Each year, supporters brave freezing water for the Plunge for Patterson — an event that proves discomfort can lead to real impact. This tradition brings people together to raise funds, spark conversations about EB, and stand in solidarity with families navigating rare skin conditions every day.
The plunge has become a cornerstone of our mission — equal parts awareness, courage, and community.
A Matter of Time — Film Premiere
Raising awareness through storytelling
In partnership with Eddie Vedder and Jill Vedder, we supported the premiere of A Matter of Time — a powerful film that helped shine a light on EB and the lives it touches.
This moment marked a major step in broadening awareness beyond our immediate circle and using storytelling to spark empathy, understanding, and action.
Early Fundraisers That Built the Foundation
Golf, football, and a lot of heart
Before large-scale events, there were grassroots efforts powered by dedication and friendship:
Charity golf tournaments that brought supporters together year after year
A long-standing fantasy football league that turned competition into compassion
These early fundraisers helped lay the groundwork for everything that followed — proving that when people care, even simple ideas can create meaningful change.
Why It Matters
Every event, every story, every moment shared helps:
Support EB families with resources and community
Fund research working toward better treatments and a cure
Raise awareness so fewer families feel isolated in their journey
This impact isn’t about one day or one event — it’s about showing up consistently, together.
The People Behind the Purpose
Board of Directors The people behind the purpose
Pursuit for Patterson is powered by a small but mighty group of people who care deeply about making a difference for families affected by Epidermolysis Bullosa (EB).
Our board helps guide the mission, support our efforts, and make sure we continue showing up in meaningful ways — for the community today and for the future we’re working toward.
Annie McKenzie – President
Jessica Cacciola – Vice Chair
Lori Cockrum – Treasurer
Peter McKenzie – Secretary
Keep the Good Going
Every gift fuels care, connection, and more moments that make a difference for EB warriors like me.