ℹ️ Heads up, friends!
The site is live and donations are open while we finish a few final tweaks. Thanks for hanging with us — the good stuff is coming together!
Hey! I'm Patterson,
budding conversationalist and Epidermolysis Bullosa (EB) warrior. I’m creating a knack for making people laugh and have a keen sense of observation. Favorite pastime? Listening to others’ life experiences and charming my way into grown-up conversations!
I care a lot about people — especially kids like me. That’s why I use my voice, my humor, and my big personality to help raise awareness for Epidermolysis Bullosa (EB). If I can make someone smile and help another family feel less alone, that’s a pretty great day.
More about Pursuit for Patterson
People with this condition (like me!) face Incredible challenges every day. With your help, we can tackle them together. Your generous gift supports our 3 core missions:
Empowering Daily Life
Helps us provide families support for managing daily life with EB. It’s the assistance that keeps people In the fight.
Connecting Our Community
Assists with travel expenses for medical care and community conferences, ensuring that no one feels Isolated In their journey.
Fueling the Future
Propels Innovative research Intiatives to discover better treatments and a cure. This Is a significant mission, and a commitment Is made to Invest the majority of funding – about 70%- Into this vital research work. Funds go to helping others and not my own personal struggles with bandaging and care. I’m forunate to get the care I need and want to help others who need It most.
What you’ll find here:
The real story of living with EB
No sugarcoating, but lots of laughs from me along the way.
Resources + support for EB families
From bandages to comfort hacks, all the stuff that makes life a little easier.
Ways you can jump in
Donate, share, or join events that help EB warriors—and keep us stocked with gear.
Updates + victories
Fundraisers, milestones, and all the moments worth celebrating.
join My Bandage-Research-Busting Crew!
Help EB warriors like me get the gear we need and keep living loud.