EB, or Epidermolysis Bullosa, is a rare genetic condition that makes a person’s skin extremely fragile. For kids like Patterson, even small bumps or friction can cause blisters, wounds, and pain. Think of it as skin that tears easily — almost like a butterfly’s wings, delicate and needing careful protection.

EB is lifelong. There’s no cure yet, but with proper care, kids can still play, laugh, and live boldly. Daily care often involves special bandages, creams, and gentle routines to protect the skin and manage discomfort.

Because EB is rare, it can feel isolating for families. That’s where support networks, research, and advocacy make a huge difference — giving families resources, community, and hope for the future.